Friday, May 21, 2010

Today's Rainbow at Special Olympics

Today was Special Olympics for my classroom. It was a PERFECT day. The sun was shining, my kids were excited, and my mom brought Miss Evelyn for a bit to join in the fun! There in the middle of everything, we looked into the sky and there was a rainbow.

Now, I'm not too sentimental (who am I kidding?) but I honestly think it was a sign. A sign that things are goign to be okay. I came back into my classroom to work on lesson plans and found the "Hopeful Parent" site. I am hopeful. My soul is filled at the moment with peace.

When Enough is Enough....

Two doctor's appointments yesterday.... we waited for one for an hour and a half. and came back with no new suggestions. Which makes me wonder.....

when is enough enough? When do you, as a parent of a child with special needs, accept your child for who they might be. I am sad, and frustrated. We go to doctor's appointments every week (or nearly every week). We get the same feedback. Do really need to know how many months delayed my daughter is? Why can't people communicate? And who the hell cares anyway?

I told my husband on the way home that I am done. We need the neurologist, yes. I can see going to the GI people once in a while to maintain the tube. But we know our daughter better than anyone. I don't need someone to scrutinize her eyes, ears, tongue, toes, hair, etc, because to me she is perfect. It is what it is. There is only one direction to go in- and thats forward.

Does it make me a bad mom that I don't want to take her to umpteen million doctors? I can't decide.

Wednesday, May 19, 2010

Step Down...... Nervously

GREAT news!!!!! Yesterday Evelyn's EEG looked great! Only "rare spikes". Are we gettign somewhere? Its so hard to know- and we are so cautious to be optimistic.... So for now we are goign to every other day on ACTH- and so nervous we could die. Please pray for us!

Monday, May 17, 2010

Dundreamin's Website

Hi all! Dundreamin has a new face! Look for some theraputic riding in the future?

Friday, May 7, 2010

Primal Scream...... Ugh.

Sooooooo...... we met with Dr. on Tuesday..... she suggested taking one of the meds away... and we had a series of spasms on Wednesday morning. Three weeks was feeling so good! Ugh. Feel like we are back to square one..... :(