Wednesday, June 2, 2010

And..... Failure.......

Ugh. Does it ever seem like two steps forward, five steps back? On Sunday we had a great day. Evelyn was intractive, smiling, laughing, playing, etc. On Monday we had a round of spasms that lasted about 2 hours...... one to two spasms every minute. It's hard not to give up the faith sometimes, especially since we had our baby back.... for a short time...... We are devastated, yet knew that this would probably happen. We are back on full-speed ahead with the shots of ACTH. We pray for an answer- or at least a slow for the neurological firestorms that plague our dear Evelyn. When it comes to times like this, I must constantly remind myself that there is only one direction- forward...... so it's that direction we will go.....

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